I had yet another meltdown today.

One of the junior testers at work had set the status of a work item I had completed to “Failed Testing”.

Thing is, he’d not actually tested it, as there was another issue that prevented him from testing it.

Maybe it’s just me, but wouldn’t you just keep the status as “Ready For Test”, rather than “Failed Testing”? How can it have failed testing, if you’ve not tested it?

So I asked the tester that.

Today my team lead took me to one side and told me that the tester had gone off sick, as a result of my comment.

This caused me to meltdown. I ended up putting a dent in the plasterboard in the meeting room with my forehead. I’d done nothing wrong. How could I be to blame for anything for questioning how something that hasn’t been tested was set to “Failed Testing”?

I ended up going home, drained.

I had a meltdown exactly one week ago and I’ve been in shutdown ever since.

During my shutdown

  • I’m not aware that I am in shutdown at the starting stage. I just feel confused and off-balance. I can do nothing but be. I have no energy or capacity to think to help myself, or anyone else. I’m like a hung PC displaying the hour glass. I’m non-responsive, unaware of my environment, lost somewhere.
  • I can’t think properly and form complete thoughts.
  • I spend the time alone and in isolation. Even though I’m surrounded by work colleagues, and have lots of virtual friends, I just cannot interact with them because I am lost in 1000 incomplete thoughts.
  • I lack energy to do much. I get home from work and just put the TV on. I don’t have the mental capacity to interact with anyone or anything. I just wait for bedtime.
  • If I do interact then what I say makes no sense.
  • I feel that all that I am able to do is breathe.

Shutdown leading into mini-meltdown

Being in shutdown can lead to further, more minor meltdowns

  • When in a shutdown I experience an implosion of thoughts. My brain doing what it does best tries to solve the problems in my life; only they are problems that it cannot readily identify.
  • During this phase I turn my anger in on myself and use words like what was I thinking, I can’t stand this, I won’t ever do this again, I am done with that. I beat myself up basically for the mistakes that I’ve made.
  • I convince myself that I will turn over a new leaf, make life altering decisions. This usually means wanting to destroy an aspect of self and the way that I do things. I long to become stronger, tougher, even if it goes against my core values. I think that if I’m harder, rude, angry then I will be able to stand up to others.
  • I analyze over and over my shortcomings and frailties, both real and imagined.
  • I make extreme decisions: I am never going on Facebook again; I am never going to ask her for help again; I am never reading about ASD again. I incorporate the word again into self-talk as a means of self-punishing for past decisions and actions.
  • I criticise my past behaviours: I cannot believe I ever thought that way or acted that way.; I shouldn’t be this way: What is wrong with me?
  • I over exaggerate the dire state of my current relationships and self-blame. Everything is somehow my fault. I should have known better. What is wrong with me to think that they ever cared, to have ever trusted, to have ever believed?
  • I wallow in self pity and hate myself for wallowing in self pity again.

The shutdown after a meltdown usually lasts for a couple of days, but it’s been 7 days now. Events of the week have kept me in this state because my anxiety and stress levels have been pushed through the roof.

My car broke down 250 miles from home and it took 9 hours to recover back home. The hire car is a nice car, it’s a Mercedes, but it’s basic. My own car has Android Auto, which means that I have a cracking Nav system, and Google Play music.

The Merc has none of this. It doesn’t have the adaptive cruise control that I am used to, has just the one automatic gearbox so the gear changes are jarring, and doesn’t have automatic wipers. The gear selector is where the wiper stalk is on the Passat, so I ended up putting the car into neutral at 70mph thinking I was operating the wipers. You even have to use a key to start the car!!!

So the lack of my usual driving aids is causing distress. I get my own car back today.

Yesterday was the 18th anniversary of my mums death. I’m never in the best frame of mind around this time.

The solicitors dealing with my remortgage which will remove my ex from the mortgage have screwed up. The mortgage offer expires in 8 days, so I contacted them last week to see when it will complete. They told me that they are waiting on documents from the ex. I know that she sent them 6 weeks ago. It’s beyond me why they didn’t contact me to let me know. She’s on holiday and won’t be back in time to get another copy of the documents off. This process started in January!!

So I now have to start the remortgage all over again, which means taking time out of work, which I stress at asking for. It also means that the ex doesn’t get the money she’s expecting for a while longer, which means she’s not going to be happy with me.

Over the past two weeks I’ve screwed up what had the potential to be one of the best friendships of my life. Each time I try to make amends I seem to make things worse, largely because of my mental state right now. This is really upsetting because she is one of the most wonderful people that I have ever met.

I’m also on call again this week, the second week in three. It’s always stressful. The constant fear of being called when you know you need to get a good night’s sleep. Lack of sleep is always a big influencer on my meltdowns/shutdowns/fuckups. I have bad sleep hygiene as it is, so when I’m already in sleep deprivation being on call really stresses me, which means I get even less sleep.

My uncle was involved in a road traffic accident last week. Because of all the facial reconstruction he has had due to cancer he cannot be understood over the phone, so I’ve had to deal with his claim for him. I hate dealing with call centres, it really raises the anxiety levels.

Because I can’t call in on my uncle until after work, I end up travelling in the peak rush hour traffic, which is bad at the best of times, but when in a hire car that is lacking in all my creature comforts, the stress really starts to pile on.

There aren’t too many differences between meltdowns and shutdowns. Both are extreme reactions to everyday stimuli, often the result of long term unresolved issues and are completely out of the control of the aspie.

I personally tend to be more predisposed to shutdowns than meltdowns.

What is a Shutdown?

A shutdown is almost the polar opposite of a meltdown. Whilst a meltdown could be described as a rage against a situation, the shutdown is more of a retreat.

As with a meltdown the aspie may act irrationally or dangerously, but unlike a meltdown the harmful actions are directed at oneself. They may be more likely to take reckless risks such as driving faster or stepping out in front of traffic. There may be attempts at self harm or even suicidal thoughts. Simply put, you don’t care about yourself, whether you live or you die.

Behaviours which come to the fore during a shutdown tend to be ones of trying to hide away from the world. Rolling up into the foetal position, crawling under things or lying face down. Gaze avoidance tends to increase and conversation is non-existent. I’ve had shutdowns at work induced by making a stupid mistake, where I will just stare at my monitor for hours, rocking, being oblivious to what is going on around me.

Causes

In common with the meltdown, the cause of the shutdown tends to be cumulative, and isn’t down to just one event. The final “trigger” may bear no relation to the actual problem.

The final trigger could be something small such as an insignificant incident at work that provokes a long term insecurity, or the result of an extreme event such as a loss of a relationship, or redundancy.

Typically the problems associated with shutdowns tend to lean towards low self esteem and depression.

I can quickly get into a shutdown if I end up in a futile conversation, when the discussion begins to feel like I’m stuck in a never-ending labyrinth where the other party is telling me that I have done or thought something that I really have not, accusing me of lying or not knowing my own mind when it is they who have misinterpreted me because they are used to dealing with Neurotypicals.

What it Feels Like

For me the pain of all the current issues in my life, both the one that triggered the shutdown and those that were part of the cumulative, comes to the fore.

I start to make mountains out of molehills, catastrophising. I’ll start thinking “what if”, “if only”, “could have”, “should have”, which is counterproductive because you can’t change the past, and you start to beat yourself up over the stupid mistakes that you’ve made.

I’ll play events over and over again in my head, in high def colour video with dolby surround sound audio, picture perfect. I’ll cross reference things said and done with previous comments and catastrophise the shit out of the situation.

I become incapable of functioning outside of those things that are essential, such as doing my job. I’ll get home from work and collapse into bed rolled up in the foetal position, or sit in the lounge staring into space, rocking to the beat of my heart. I’ll skip meals, or eat junk. I’ll perform the just the basics to maintain my personal wellbeing. I’m on autopilot.

I feel unfulfilled, lacking in motivation.

This is the worst time for me to communicate with the outside world, as my cognitive abilities are shot to pieces. This is the time when I will be most abrupt and blunt, and if I communicate I will often make things worse. I don’t think straight, and I’ll piss off the people that I need in my life the most.

So I will often ignore phone calls and messages, which pisses people off further, but they don’t understand that I just don’t have the ability to respond. This isn’t a cry for help, a game. This is pure on spiralling out of control into the abyss.

I really just want to be left alone, for the world to stop long enough for me to sort out my thoughts. I feel so alone and isolated, yet paradoxically I want to reach out to people, wanting them to understand me and to make allowances for my responses to situations that they are involved in with me.

I want to cry from the frustration but can’t.

Sometimes, depending on the level of pain I’m feeling, and how much my world is spiralling out of control I can quickly get to a very dark place thinking what’s the point of it all. I’m not the suicidal kind, I’m a coward and could never take my own life, but I do start to wish for a natural death; I want to go to sleep and not wake, or have a heart attack.

I am exhausted from living, but I want to live. I want to get better. I want to regain energy.

A shutdown usually lasts a couple of days for me, and like a meltdown it is so draining that the cumulative effects are felt for days after, the meltdown hangover! On coming out of the shutdown, as with the meltdown I tend to feel stupid and can’t look the world in the eye.

“Dealing” with it

Often when in shutdown I will just get in my car and drive. And drive. And drive. It’s my escape from the world. I’ll put my music on, divert my phone to voicemail, and just drive, often with no destination in mind. I just want to escape the normality of my life.

A few years ago I had a massive argument with my partner. She told me she was leaving and went back to her mums on the Saturday morning. I went into a shutdown, got into my car and drove the entirety of the Welsh coast over two days, sleeping in my car overnight. I didn’t take my phone charger and the phone soon died.

When I got home she’d “come back” and she was going out of her mind with worry as she’d not been able to contact me. She’d called my friends, family and the police as she was sick with worry. Because she had “left” me it never occured to me that she might actually care.

This is the reality of shutting off during the shutdown.

I had a meltdown on Friday night, and 3 days later I’m still knocked for six, stuck in the meltdown hangover.

Since separating from Maria almost 12 months ago, I’ve been a member of several closed singles groups on Facebook. No one caught my attention until a few months ago when Jenny arrived in the group.

There was something different about Jenny. She didn’t seem to be taking the group seriously and her posts and comments went over the heads of the many guys who were drooling over her because of her stunning looks and her risqué comments. I saw something else though, a witty sarcastic intelligence. I had a gut feeling that I would meet her one day, and I did.

We had a bit of a fall out a couple of weeks ago. Our friendship is very new, just 6 weeks old, but already I know that she’s someone that I want in my life forever. We’d been chatting 19 hours daily, swapping almost 7000 messages in just 3 weeks, 1163 on one day alone (yeah, Aspie stats obsession!). I even visited her for 5 days just a few weeks after we first spoke.

She felt like a friend on steroids. We just got on, we had an affinity. We were on the same level. It’s rare for me to find someone like that. There certainly didn’t seem to be anything of a romantic nature from either side, not that I would really notice if there was.

So when we fell out my anxiety levels heightened. I didn’t want to lose this amazing new friend. We quickly resolved our issue, but then it all went wrong again within hours and I wasn’t sure why. I asked if she was still coming to visit me at the end of the week and she said it wasn’t a good idea, so rather than pick up the phone and resolve the issue, I put my head in the sand and that was the last we spoke until 4 days later.

At the end of the week I sent her flowers, to get her attention. I knew that she’d contact me; she’s too polite not to. We chatted and things seemed to be smoothed over, but then she just turned on me. For three hours we had a circular conversation that ended up with me going into a meltdown due to the futility of it.

To be told over and over that she didn’t believe what I was saying, that I was playing some kind of game, frustrated me. How do you prove that you’re not lying? I quickly got closer and closer to meltdown. It didn’t make sense to me. I surmised that she was jealous of my other friendships. Was she into me in “that” way, and I’d not realised? I’m pretty rubbish at spotting that.

Eventually I started to react to what was being said rather than act rationally. I could see the friendship slipping away and I needed a way to let her know that I wasn’t interested in others, that my only interest was her friendship. So I told her that I loved her. Yeah, I know. Dumb move because I don’t. I’ve no idea what I feel for her but it’s not that. I guess I thought saying that would prove to her that I wasn’t interested in anyone else. I was in meltdown and all cognitive ability goes out of the window.

So now we’re not speaking again because it’s all a little weird. I miss her. I miss our daily conversations about nothing much. I’m afraid that I’ve ruined what would have been one of the best friendships of my life, and I don’t know what to do next.

Since being diagnosed I have been able to look back on my life and recognise that I have had meltdowns throughout, but they were minor in comparison to one specific episode, which to me was my first “proper” meltdown. It was certainly the most violent, and was a turning point in my life.

I was 40 when I had my first meltdown, although I didn’t know that’s what it was at the time, as I’d yet to be diagnosed as being on the spectrum.

It took place on New Year’s Eve 2013.

I remember it very vividly.

My partner at the time, Maria, ran her own business and as we lay in bed that morning she reminded me that I had promised to go into her office and put her servers onto an Uninterruptible Power Supply, as there had been issues with the power to the building.

I really didn’t want to do it, as it was New Year’s Eve and I didn’t want to be doing any kind of work, so there was tension as we spoke. She pointed out that she’d been asking me to do it all week, and that the blackouts were causing work to be lost.

When she mentioned blackouts I argued back that she’d never mentioned blackouts to me. She was adamant that she had. I pointed out that she had told me that the power kept dipping, which is a brownout not a blackout, but she insisted that the two were the same thing.

Now at this point the reader familiar with Asperger’s will probably recognise what was going on in my head, the issue of getting hung up on the very precise definition and usage of words.

So an argument ensued, and voices got louder and louder on both sides, with me repeatedly insisting that a brownout was not the same as a blackout (it is not!) and she was insisting that I was just being awkward on purpose and knew exactly what she meant (I didn’t!).

The next thing I remember is that I’d jumped out of bed and stood there repeatedly slapping my forehead hard. At this point we were in a full blown argument, and she said a few more hurtful things, probably to do with the fact that I was now out of control.

I remember feeling so frustrated that I was being blamed for her not knowing the difference between a blackout and a brownout, and that it had lead to an argument.

The next thing that I remember was falling to the floor and repeatedly banging my head between the wall and the wooden bed-frame. There is about 18 inches between the two, and I was ping-ponging my head very hard between them. I did this with such force that it split the bed-frame.

Whilst I was doing this I was also screaming, shouting and crying. Eventually the head banging stopped and sobbing ensued. I just lay there motionless for quite a while. I’ve no idea for how long, I guess about 15 minutes.

My behaviour stopped the argument dead, but Maria had no compassion. She thought that I was having a childish temper tantrum and had no sympathy. I can’t remember what she said, but it would have been angry and cutting.

It made it worse that the commotion had attracted the attention of our 12 year old daughter who witnessed the entire episode.

They left the house, and went to the cinema without me, which upset me as it was our NYE tradition. When she got back she told me that the relationship was over, that I had to move out, but she’d give me a few weeks to find somewhere to live.

What had happened scared them both, and she didn’t want our daughter to be in an environment where I would do something like that. Which is understandable.

It scared me too. I had no idea what had just happened to me. I had no control. I didn’t want to be banging my head into the wall, but I couldn’t stop it. And when I eventually did stop, I had no energy; I felt exhausted.

So I had to figure out what had just happened to me. Through some skilful Googling I came across autism and Asperger’s. As someone had joked a few months earlier that I might be autistic I focused on this. The more I read about Asperger’s the more I identified with what I was reading. It kind of made sense of a lot of my life.

So I took one of the online AQ tests and scored a high 42.

I did read around other conditions too, but Asperger’s was the only condition that matched. I made an appointment with my doctor and that was the start of my journey into unravelling the first 40 years of my life.

Following on from that first meltdown, I’ve only had 2 more “major” episodes, and a few minor, but I’ll write about those some other time.